Practical Tools and Guides for Navigating Chronic Illness

Hello, I’m Chris!

I’m 39 and I live with Ehlers-Danlos syndrome, ME/CFS, MCAS, POTS and neurodivergence.

For most of my life I was trying to figure out what was wrong with me and why I couldn’t function properly, while being invalidated by doctors and everyone around me.

I know what it feels like not to be heard or understood. It took more than three decades for me to get proper diagnoses. I saw more than 150 doctors, and many of them caused me harm.

Along the way, I discovered how to prepare for appointments, communicate clearly with clinicians, and persist despite overwhelming challenges.

Drawing from years of one-on-one coaching with people facing chronic illnesses, I realised I could reach more people by creating downloadable guides, templates and tools that capture the strategies I’ve seen work repeatedly.

My goal is to empower you with the resources I wish I’d had, practical, evidence-aware, and designed to give you clarity and confidence in a challenging environment. Whether you need help preparing for a doctor’s visit, weighing up the risks of a new treatment or simply want resources from someone who understands, my guides can help.

👉 Explore my Tools and Guides:

🩺 A Medical Summary That Gets You Heard

Turn years of scattered records into a crisp summary your doctors can scan in seconds, so your appointment time goes to decisions that matter. Download the template, fill it in once, email it ahead, and update it as you go. Walk in confident and get heard.

🆓 FREE EDS Guide — 2025 Edition
Subtypes, genetics, diagnosis tips, management, resources, all in one clear, current PDF. Please share. 🦓

Why I Do This Work

Empowering you to achieve meaningful improvements to your quality of life.

Living with chronic illness is challenging, but the right tools can make it more manageable. I know from experience. Years of navigating complex conditions taught me what works in real life.

Through my coaching work with people with EDS, ME/CFS, POTS, and related conditions, I helped them prepare for appointments, track symptoms, and make informed decisions. >

I've now shifted my focus to making that support widely available through these resources. My resources help you:

Prepare for doctor’s visits and communicate clearly with clinicians
Track symptoms, medications, and progress over time
Organize your care and make evidence-aware decisions
Avoid unnecessary harm from unproven treatments

These resources provide practical support you can access instantly.

Why I Do This Work

Contact

Let’s Connect

I’d love to hear from you. If you have a question about my tools and guides, or want to share your story, reach out below.

A quick word on privacy:
Anything you share with me is kept in the strictest confidence. I will never share your personal information with any third party unless you explicitly request it.